Starting the Count Down

It seems like Brianne's end of treatment is just around the corner.  Only 18 weeks of treatment left!  Today Brianne had her spinal chemo along with Vincristine in her port.  I could not be happier to say that she only has ONE more spinal chemo treatment left.  We are starting to plan Brianne's No Mo Chemo Party.  We cannot wait to get together to celebrate Brianne finishing treatment and to thank everyone that has supported our family along the way.


Brianne has had a rough start to 2014.  For about a week Brianne had a dry throat, but it didn't seem to slow her down.  Everything changed when she woke up at 2:00 a.m. with a 102.7 fever and vomiting.  We rushed her to the hospital because with a fever over 100.4 the doctors worry about central line infections so antibiotics must be administered ASAP.   Brianne threw up the whole way to the hospital and about every 10 minutes until she got a second dose of antinausea medication.  Even though her blood counts were great she was still admitted due to the high fever and heart rate.  Brianne spent three days in the hospital.  The doctors believe she just had a virus, but her fevers kept coming back so she stayed on IV antibiotics while we waited to make sure her blood did not grow any bacteria.  When she was feeling good she had a great time making art projects and during music time.

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Brianne was discharged just in time for us to go to Camp Soaring Eagle Family Camp in Sedona.  Once again it was nothing short of amazing.  The moms got to go shopping at Allie Ollie and pick out a new outfit along with going out to lunch at the golf course.  Brianne loved all the arts and crafts, archery, and games.  Brianne was on steroid during camp so she had a few "unhappy moments", but overall she had an amazing time.  We cannot thank Juan, Maria Elena, Tyler, and all the volunteers for everything they do to make these trips possible.  Brianne is so excited to spend a week with Camp Soaring Eagle in Connecticut this summer.  It will be such an amazing experience for her and I am sure she will come home with new lifelong friends. 



We had so much fun celebrating our friend Payte's end of treatment.  Payte, Bella, and Brianne all had the same type of leukemia.


Five days after we came home from camp Brianne ended up with a fever again.  She had a flu swab, chest x-ray, and UA.  When everything came back clear we were sent home with instructions to follow up at the clinic the next day for more antibiotics.  Brianne was placed on 10 days of a new antibiotic for what the doctor suspected to be a sinus infection.  She has been feeling great since finishing the antibiotics.  I just wish she would get rid of the lingering cough.  It sounds horrible!    Unfortunately, with adding the antibiotic Brianne's counts were screwed up this week.  Her ANC dropped to 840 when she normally runs in the 1200-1500 range.  She will go back to the clinic in two weeks for another count check to make sure she doesn't drop any lower.  Until then we will be extra diligent with keeping germs away, which is hard during flu season. 

I have to post one more video....the Forever Young Zone was doing Winter Olympic today.  Here is Brianne and her nurse Christine curling :)
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As always, that you for all of your prayers and support.

2 comments:

  1. Wendy said...

    what a great post! So glad to see this journey coming to an end for all of you.. You are a super family! Hugs, Wendy

  2. So excited that the end is in sight. Thank you for keeping us posted. God bless!

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